Inscription d'autistes comme consultants du projet de recherche AIMS-2-TRIALS

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Apply to have your say in autism research

L'inscription est sur Autism Representatives Recruitment Form, la date limite est proche: 25 mars 2019.

C'est AIMS-2-TRIALS (Autism Innovative Medicine Studies) qui cherche des consultants/représentants de l'autisme (Autism Representatives = A-Reps), voilà comment ils expliquent leurs buts:

Project partners know that while some people want a cure for themselves, their child or a relative, there are others who are opposed to this. AIMS-2-TRIALS does not aim to cure autism. Partners do aim to understand autism better and to test medical treatments that could alleviate specific difficulties that some autistic people experience.

https://www. aims-2-trials.eu/about-us/team/autism-representatives/ :

We are looking for people willing and able to commit to engaging in 1-4 discussions per year on research and policy for the next 4.5 years. [...] The groups will discuss and provide feedback on the subject(s) that most interest them, such as:
- Research ethics
- Science communication
- Policy development
- Training for researchers and clinicians designed by the autism community
- Developing outcome measures

https://autistica.sharepoint.com/:b:/g/ ... vl025CNQ8w :

To become an A-Rep you must:
- Have a diagnosis of autism or be a parent/carer of someone with autism
- Show proficiency in spoken and written English. All discussion groups will be held in English. Written material distributed over the course of A-Reps will also be in English
- Participate in minimum activities. Participation will involve attending discussion groups on specific topics of your nominated interest from 1-4 times each year. Each discussion group will last 1-2 hours. Most groups will be via telephone or online.